Wednesday, May 2, 2012

Mary Ann Clay-Schumm | Mobility Awareness Month - Vote For Me!

Mary Ann Clay-Schumm | Mobility Awareness Month - Vote For Me!

My Godmother was in the hospital for 7 months, 2 months of it was spent in the Intensive Care Unit. She has a very rare disease called
Hyper Postural Orthostatic Tachycardia Syndrome. Hyper P.O.T.S. for short. Every time she sits up or tries to stand up her heart rate goes over 200 beats per minute and her blood pressure climbs to 300/180. The Doctors told her she would not live to see her next birthday, that was 2 years ago. I watched her in her darkest hours give support to everyone around her and not once think of herself. Her strength and determination to find a cure makes her my HERO! It's very sad for my little sister and I to see her like this. She used to do so much with us. Every year she would help organize and run our Community Fall Festival which raises money for the needy. Now, I'm hoping to help give back to her. Everyday my Godmother lives her life in either a reclined or laying position just to keep her heart rate somewhat controlled. She is only allowed to walk 4 time a day, 1 minute at a time. But, she does not let that stop her. She teaches us how to paint, cook, and do so many different crafts. Most of all she has taught my sister and I to never give up. The local Doctors have either not heard of the disease or do not know how to treat it and some just don't want to be bothered. It just is not right to leave someone with no help or hope. She has found a few Doctors out of state that are willing to help but she is not allowed to fly. She does have a special wheelchair made to let her lay flat, but we have no way to transport her in it. I know that if she could get to some of the big city hospitals someone, somewhere would be able to help her get some kind of quality of life back. She spends so much time searching for a cure that I know in my heart that some day she will educate Doctors and make sure others will not have to suffer like she has, and if you ask me why she would, I'd tell you "That's just how she ROLLS"


  1. You are truly an inspiration to other crafters. Good luck on your uphill battle. It is clear you are a fighter and best of luck on the vehicle.
    Loving Scrapper101

    1. Thank you so much for the kind words and support. We have some head way on voting. I would like to think that we will make it into the final round but regardless of how it turns out, the new friends I have made and the love and support that has been shown just proves I am already a winner. I truly hope you have a happy, healthy, crafty day!!!