Monday, April 30, 2012

Gluten free chips and salsa review

Because of my disease I have to follow a Gluten free, dairy free, low sodium, low fat, low residue diet. This can be a challenge for even the best chefs, and I feel bad that Mark gets stuck eating some of the same crap I do because my cooking time is limited.
But, let me tell you I found the best chips and salsa I have ever had in my whole life. Green Mountain Gringo Roasted Garlic Salsa - No preservatives, fat free, low salt, gluten free, no genetically modified, no allergens. 16 oz jar $5.15
Food Should Taste Good Brand All Natural Blue Tortilla Chips - certified vegan, cert. gluten free, cert. kosher, cholesterol free, no trans fat, no msg, low sodium, not genetically modified, no art. colors, flavors or preservatives. 5.5 oz bag $3.28
I purchased them from Ada's natural food market, but I'm sure Whole Foods or a better grocery store would carry them. It's an expensive treat but well worth every penny!!! YUM YUM!!!

The Chronicles of a Handicapped Crafter - My Story

Wednesday, April 25, 2012

Great Article about POTS

Thank you to my Sister-In-Law Nancy. She works at Vanderbilt in Nashville and seen this article about POTS in the Vanderbilt Reporter. I feel this girls pain all to well. I'm so happy to see she too turned to Arts and Crafts to keep going. One person call only handle so much, we all need a release! No matter what your illness or disability is, please take time everyday to be kind to yourself!

‘Head rush’ disorder makes life a daily balancing act (04/19/12)

Monday, April 23, 2012

My First YouTube Video

National Mobility Awareness Month Local Hero Contest


May is National Mobility Awareness Month and NMEDA IS celebrating Local Heroes all across North America. They will be giving away a minimum of three Wheelchair Accessible Vehicles to a caregiver, veteran or person with a disability that is dealing with or overcoming mobility challenges.

I was nominated by my 13 year old Godson as his hero. Please read the story he submitted and if you feel we deserve to win click the link and vote. We also need your help by sharing this story also. Please use promo code 900 and I will receive 5 bonus vote. You can vote once every 24 hours until May 13, 2012.
Thank you for your time!
Mary Ann
My Godmother was in the hospital for 7 months, 2 months of it was spent in the Intensive Care Unit. She has a very rare disease called
Hyperandrenergic Postural Orthostatic Tachycardia Syndrome. Hyper P.O.T.S. for short. Every time she sits up or tries to stand up her heart rate goes over 200 beats per minute and her blood pressure climbs to 300/180. The Doctors told her she would not live to see her next birthday, that was 2 years ago. I watched her in her darkest hours give support to everyone around her and not once think of herself. Her strength and determination to find a cure makes her my HERO! It's very sad for my little sister and I to see her like this. She used to do so much with us. Every year she would help organize and run our Community Fall Festival which raises money for the needy. Now, I'm hoping to help give back to her. Everyday my Godmother lives her life in either a reclined or laying position just to keep her heart rate somewhat controlled. She is only allowed to walk 4 time a day, 1 minute at a time. But, she does not let that stop her. She teaches us how to paint, cook, and do so many different crafts. Most of all she has taught my sister and I to never give up. The local Doctors have either not heard of the disease or do not know how to treat it and some just don't want to be bothered. It just is not right to leave someone with no help or hope. She has found a few Doctors out of state that are willing to help but she is not allowed to fly. She does have a special wheelchair made to let her lay flat, but we have no way to transport her in it. I know that if she could get to some of the big city hospitals someone, somewhere would be able to help her get some kind of quality of life back. She spends so much time searching for a cure that I know in my heart that some day she will educate Doctors and make sure others will not have to suffer like she has, and if you ask me why she would, I'd tell you "That's just how she ROLLS"